PROSE Treatment Relieves 18 Years of Eye Misery Due to Stevens Johnson Syndrome

Thank you to Scott K. who submitted his family's story on our website. under the Share Your Story link at the bottom of our Patient Success Stories page.  Patient stories are incredibly important in helping others better understand the need for and the process and benefit of PROSE treatment. "During the summer of 1997, our daughter, age 8, had an allergic reaction to bactrim, for which she was on day 9 of a 10-day regiment. We took her to a children's hospital in Atlanta, Georgia, where she was diagnosed with Stevens Johnsons Syndrome. It was 10 days of hell for her, my wife, and me. The most severe effects of SJS were with her eyes. Light hypersensitivity, constant pain, and constant corneal ulcers all contributed to her anxiety (and ours). For 18 years, our daughter dealt with the above. At age 26, our daughter's eye doctor informed us about the PROSE treatment. We took her to Boston during Thanksgiving week of 2015. The staff were so supportive. The men, women, and children who we met who were being treated all had life-changing stories to tell about their journey to be at Boston. It was truly a miracle! The very first day, after being fitted with PROSE devices, my daughter was able to go outside, in the daylight, not having to wear two pairs of sunglasses! From that first day, her's and our lives changed for the better. She had endured 18 years of misery because of her eyes, and just [...]

2024-04-03T12:54:28-04:00March 20, 2023|Patient Stories, Blog Posts, PROSE|

PROSE Treatment Provides Relief from Higher Order Aberrations

“The enemy of perfection is good.”  Nate Jessiman told me about this quote from Voltaire, which an eyecare practitioner had told him during a visit. “This quote is terrible,” Nate said. “It’s a crutch for not trying to do more. I want to continue to see advances.  Good is not good enough.” Nate was diagnosed with keratoconus in his late teens. Now, 25 years later, he has his first pair of PROSE devices with SmartSight HOA® correction and can see well –not perfect – but well.   Getting a keratoconus diagnosis  More than 20 years ago, keratoconus wasn’t as well known. When he was first evaluated by an optometrist in his teens, the provider thought Nate was on drugs, because that seemed to be the most likely cause of ghosting, blurriness, and double vision, also known as higher-order aberrations (HOAs). Nate’s keratoconic corneas don’t have prominent bulging, but the condition is advanced enough to cause significant HOAs in his vision.  The aberrations impacted his ability to recognize faces from a minor distance. “I knew there was something wrong with my eyes. So, I went to Ocala (Florida) about 2 hours from where I lived, and spoke with a specialist.  That was when I finally got the keratoconus diagnosis.” Over the years, he saw multiple eye care practitioners. Scleral lenses really didn’t become commercially available until the last 15 years, so Nate and the eye care community were dealing with limited options.  When he finally was fit with scleral lenses, the [...]

2024-01-31T09:57:05-05:00March 8, 2023|Patient Stories, Blog Posts, PROSE|

PROSE Provider Spotlight: Dr. Britney Kitamata-Wong | UCSF Medical Center

We sat down with Dr. Britney Kitamata-Wong, a PROSE Provider at the University of California San Francisco Medical Center, to learn about her experience using PROSE treatment and scleral lenses, and how she chooses between these modalities when working with patients.  Prefer video? You can watch Dr. Kitamata-Wong answer our questions here. What drove you to a career in fitting specialty lenses? I've always had an interest in specialty contact lenses ever since I was an optometry student. I used to work in contact lens research, prior to optometry school and that got me really interested in the art and science of contact lens fitting. When I see patients in my clinic, I see how they can dramatically improve their vision, their comfort, and it's such a rewarding experience as a provider to work with these patients. How did you first learn about scleral lenses? I completed a residency in cornea and contact lenses at the Southern California College of Optometry at Marshall B. Ketchum University. And at that clinic, I learned a lot about scleral lenses, gas-permeable contact lenses, all sorts of specialty lenses. It was a great experience and I love having that variety in my clinical practice. What led you to become a PROSE provider?  Before becoming a PROSE provider, there was a limitation to what I could achieve with traditional scleral lenses. There were times where I had to look at a fit, and there was something I didn't quite like about it, but I'd have [...]

2024-04-03T12:50:32-04:00February 23, 2023|Blog Posts, PROSE|

NOTICE: Recall of EzriCare & Delsam Pharma Artificial Tears Lubricant Eye Drops

We recommend you immediately stop using artificial tears under the brand EzriCare & Delsam Pharma. A summary statement is below. You may read the full statement from the FDA here. Company Announcement Date: February 02, 2023 FDA Publish Date: February 02, 2023 Product Type: Drugs Reason for Announcement: Potential microbial contamination Company Name: Global Pharma Healthcare Brand Name: EzriCare & Delsam Pharma Product Description: Artificial Tears Lubricant Eye Drops Global Pharma Healthcare is voluntarily recalling all lots within expiry of their Artificial Tears Lubricant Eye Drops, distributed by /EzriCare, LLC- and Delsam Pharma, to the consumer level, due to possible contamination. The Centers for Disease Control and Prevention (CDC) alerted FDA to an investigation of a multi-state cluster of Verona Integron-mediated Metallo-lactamase (VIM)- and Guiana-Extended Spectrum-Lactamase (GES)­ producing carbapenem-resistant Pseudomonas aeruginosa (VIM-GES-CRPA) infections possibly associated with the use of the artificial tears manufactured by Global Pharma Healthcare. To date, there are 55 reports of adverse events including eye infections, permanent loss of vision, and a death with a bloodstream infection. Risk Statement: Use of contaminated artificial tears can result in the risk of eye infections that could result in blindness.    

2024-04-04T13:48:51-04:00February 7, 2023|In the Media, PROSE|

Patient with Basal Cell Carcinoma on Eyelids Finds Success with PROSE

Meet Wayne. He is a vocal proponent of his experience with BostonSight and PROSE treatment. This story and video are published with permission.   Transcript follows: “My name is Wayne Arruda and I’ve been coming to BostonSight since last March. I switched primary care, went to a new primary care and they sent me to the Rhode Island Eye Institute who the first doctor looked at me and said, ‘You need to see another doctor,’ who was their surgeon. And he knew right away that I had basal cell carcinoma just from looking at it. It was so bad, that both lids, both the upper and the lower lids were removed." Learning about PROSE So I went to Mass Eye and Ear and that’s where Dr. Freitag suggested the PROSE lens. So, the first time that Dr. Patel put the lens in, I had been through two years of every moment wishing I was dead. And he put that in, and it was almost like a miracle. It was miraculous. And now they know how bad the dryness is for the cornea, so I’m now on two lenses. A daytime PROSE lens, and a nighttime as well. Which greatly helped the stress of the eye and has stopped so much discharge coming from the mucous membrane in the upper lid." About BostonSight For the almost two years before I got the PROSE lens, every day it was like, if I can’t get this eyeball removed, I can’t go on living. [...]

2024-09-17T14:14:04-04:00December 12, 2022|PROSE, Blog Posts|

Stevens-Johnson Syndrome (SJS) Patient Finds Relief with PROSE

Grace Avila was having back pain when her physician prescribed a muscle relaxer. Within a few weeks, blisters appeared across her body. Doctors thought she had a hand, foot, and mouth disease, a common viral infection in young children that sometimes occurs in adults. Over and over, she was told, “Just let it run its course.” But to Grace, whatever was happening to her body felt like it was eating her alive. She couldn’t eat, walk, or see. When her sister visited, she immediately called 911. Grace had blisters covering her mouth, eyes, throat, torso, and more. “I’d rather be dead than be here,” she told her sister. Living with Stevens-Johnson Syndrome A nurse by profession, her sister was convinced Grace had Stevens-Johnson Syndrome (SJS), a severe condition that affects the skin, genitals, eyes, and mucous membranes, including the lining of the digestive tract. Stevens-Johnson Syndrome is caused by an adverse reaction to medication or, sometimes, infection and can cause severe symptoms such as Grace’s that require months to heal, if they heal at all. Grace’s condition was so debilitating that she spent two weeks in the hospital with her eyes completely covered by bandages and her mouth sealed shut because of blisters. She was kept alive via IV fluids. After two weeks in care, she had surgery, where surgeons placed membranes on her eyes to prevent further scarring. Following her hospital stay and surgery, Grace’s left eye didn’t produce any tears, and it never will again. When she [...]

2024-04-03T12:57:46-04:00November 17, 2022|Blog Posts, PROSE|

PROSE Provider Spotlight: Dr. Brittany Yelle | Precision Cornea Centre of Ottawa

We recently sat down with Dr. Brittany Yelle, a PROSE Provider at Precision Cornea Centre in Ottawa, Canada, to learn about her experience using PROSE treatment and scleral lenses, and how she chooses between these modalities when working with patients.  Prefer video? You can watch Dr. Yelle answer our questions here. What led you to become a PROSE (Prosthetic Replacement of the Ocular Surface Ecosystem) provider?  What led me to become a PROSE Provider was having really complex cases sent over by my cornea colleagues and not being able to get adequate fittings. I wouldn’t put up with telling them that there was nothing else that could be done. So, I decided to become part of the PROSE family so that I can help those patients out.  How has fitting specialty lenses changed your perspective on the needs of your patients?  Fitting PROSE or specialty contact lenses has definitely changed my perspective in the sense that I we’d put up with things beforehand and say that’s all that could be done. And now, we’ve got so many other options for patients. So, if patients are motivated, I tell them that we should never give up and keep going.  When do you use PROSE treatment vs. a traditional scleral lens?  I consider PROSE treatment to be like a tailored suit. Some patients prefer having their suits tailored right off the bat, and some patients have no choice but to get a tailored suit. And so, depending on the case, I’ll often [...]

2024-04-03T12:51:16-04:00November 3, 2022|Blog Posts, PROSE|

PROSE Provider Spotlight: Dr. Christina Abuata | Baylor College of Medicine

We recently sat down with Dr. Christina Abuata, a PROSE Provider at Baylor College of Medicine, to learn about her experience using PROSE treatment and scleral lenses, and how she chooses between these modalities when working with patients.  Prefer video? You can watch Dr. Abuata answer our questions here. Why did you choose a career in specialty contact lenses? What drove me to fit specialty contact lenses was an externship that I did in optometry school. I was with a really great mentor who taught me the foundations of fitting scleral lenses, and during those appointments with the patients, patients always would say ‘you really need to do this, we never got the care that we needed and that we wanted, and we need more doctors like you’. And I was still a student at the time so I thought that maybe pursuing a residency or a fellowship and creating a stronger foundation would lead me to that path, and that’s why I wanted to fit specialty contact lenses PROSE vs scleral, what’s the difference? I fit both PROSE and scleral lenses, and the main difference that I take into consideration when I’m doing a consult with patients is their underlying condition. If it is a chronic progressive condition or somebody that I feel needs more time to fit, a little bit more hand-holding in the beginning, and maybe more customization, that’s where I draw the line and I say that they’re a PROSE candidate. If I have a patient [...]

2024-04-03T12:52:18-04:00October 12, 2022|Blog Posts, PROSE|

BostonSight PROSE Provider Network Welcomes Dr. Britney Kitamata-Wong

Supports PROSE Treatment Growth Dr. Britney Kitamata-Wong, UCSF Needham, Mass. –June 21, 2022 – BostonSight® announced today that Britney Kitamata-Wong, OD, FAAO, FSLS, has joined the PROSE Provider Network at the University of California, San Francisco site. Dr. Kitamata-Wong joins Dr. James Li at UCSF as the need for PROSE treatment grows. They are part of a select group of PROSE-trained Fellows, with fewer than 30 optometrists in the world holding this designation. PROSE® is a medical treatment that saves sight in individuals with severe ocular surface disease.  For many people, PROSE is often their only option to restore visual function and end suffering from critical and devastating eye issues resulting from complications of severe dry eye, keratoconus, ocular GVHD, Sjögren’s Syndrome, Stevens Johnson Syndrome, corneal damage or injury, and other corneal diseases. PROSE treatment teams include cornea specialist ophthalmologists and optometrists who have completed an intensive BostonSight PROSE Clinical Fellowship. During treatment, doctors customize prosthetic lens devices from gas-permeable polymers for each patient’s condition and unique eye shape. PROSE teams work in partnership with the patients’ other medical providers to ensure that treatment manages the underlying eye condition. Dr. Kitamata-Wong earned her Doctor of Optometry degree at the University of California, Berkeley, School of Optometry. She completed a residency in cornea and contact lenses at the Southern California College of Optometry at Marshall B. Ketchum University. Her clinical interests include visual rehabilitation and contact lens management for patients with ocular surface disease and corneal irregularities. Dr. Kitamata-Wong has worked in clinical research relating to contact [...]

2024-04-03T12:13:56-04:00June 21, 2022|PROSE, Press Release|

Dr. Bita Asghari, Associate Director of Clinical Education, Featured on Two Podcasts

Dr. Bita Asghari, PROSE provider and BostonSight's Associate Director of Clinical Education, was recently featured on two podcasts: Clique on Dry Eye: The Intersection of Scleral Lenses and Dry Eye Disease (19 min) Scleral contact lens expert, Dr. Bita Asghari, discusses how scleral contact lenses intersect with other dry eye therapies to bring patients maximal comfort.  Find out where sclerals can fit into your treatment strategy.   Try Not to Blink: Is it a Fit Issue or an Eye Issue In this special episode, Try Not to Blink hosts, Jimmy and Roya, talk to Dr. Asghari about her background and how she fulfilled her American Dream though her optometric career.

2024-04-04T13:36:35-04:00June 17, 2022|Blog Posts, In the Media, SCLERAL, PROSE|
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