*This article is a guideline only and is not to be construed as medical advice. Always contact your eye care doctor with questions and for treatment options.

Stevens-Johnson Syndrome (SJS) is a rare but potentially life-threatening condition known for its acute impact on the skin and mucous membranes. While the immediate consequences are well-documented, the long-term effects of SJS on vision often linger as silent challenges, significantly affecting the quality of life for survivors. In this post, we’ll take a closer look at the enduring impact of SJS on vision and explore some strategies for managing these long-term effects.

Understanding the Persistence of Vision Challenges 

  1. Corneal Scarring and Visual Disturbances: One of the enduring effects of SJS is corneal scarring, resulting from severe inflammation during the acute phase. This scarring can cause visual disturbances, including blurred or distorted vision and vision loss.
  2. Chronic Dry Eyes and Discomfort: SJS often leads to chronic dry eyes, a condition where the eyes do not produce enough tears or the tears evaporate too quickly. This ongoing dryness can result in discomfort, irritation, pain, and a gritty sensation, significantly impacting daily activities.

Navigating the Long-Term Vision Challenges

  1. Specialized Eye Care: Individuals who have experienced SJS should prioritize regular eye examinations with an ophthalmologist specializing in the management of SJS-related complications. These specialists can monitor the progression of vision challenges and recommend tailored interventions.
  2. Management of Dry Eyes: Chronic dry eyes require consistent management to alleviate discomfort and prevent further complications.
  3. PROSE Treatment: PROSE treatment uses specially designed prosthetic scleral lenses that vault over the corneal surface, creating a reservoir between the cornea and the lens. The reservoir is filled with preservative-free saline to bathe and hydrate the eye all day, providing immediate relief and comfort, and promoting healing. PROSE prosthetic lenses can also provide improved vision. Think of the lens as a “new” cornea, which creates the shape of a typical, healthy cornea. This allows light to enter the eye at the correct angle for improved vision
  4. Corneal Transplants and Surgical Options: In cases where corneal scarring severely impacts vision, corneal transplants may be considered. Surgical options aim to replace the damaged cornea with a healthy donor cornea, potentially restoring clearer vision. However, the decision for surgery depends on individual circumstances and must be carefully evaluated with your healthcare professionals.

Embracing Adaptive Strategies:

  1. Low Vision Aids and Assistive Technologies: Individuals facing persistent vision challenges may benefit from low vision aids and assistive technologies. These tools, such as magnifiers, screen readers, and specialized computer software, enhance independence and support daily activities.
  2. Counseling and Support Services: Coping with the long-term effects of SJS on vision can be emotionally challenging. Seeking counseling and support services can provide valuable guidance in adjusting to changes in visual abilities and maintaining a positive outlook on life.

As survivors of SJS navigate the long-term effects on vision, a proactive and holistic approach to eye care is paramount. Regular monitoring, specialized interventions, and adaptive strategies empower individuals to manage persistent challenges and enhance their overall well-being. By shedding light on the enduring impact of SJS on vision, we hope to foster awareness and encourage those affected to engage in ongoing care, unlocking a future where vision challenges are met with resilience and support.