Conditions PROSE Treats
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- Conditions PROSE Treats
- Dry Eye Syndrome
- Keratoconus and Ectasia
- Graft vs Host Disease- GVHD
- Stevens Johnson Syndrome
- Sjogren's Syndrome
- Post-Corneal Transplant
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- Prosthetic Device Use and Care
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Stevens Johnson Syndrome
"Prior to getting PROSE, life was hard. Everything that I loved was slipping away...that all changed the day I got PROSE."
— SJS patient
90% of patients with ocular complications from SJS / TENS, including dry eyes, eye pain, light sensitivity, scarring, and corneal erosions reported significant success with BostonSight™ PROSE and 100% reported moderate or significant success.
Contact us today to find out if we can help you!
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Stevens Johnson Syndrome: How PROSE Treatment Can Help
About Stevens Johnson Syndrome SJS / TENS
Stevens Johnson syndrome (SJS) and the more severe variant of the disease, toxic epidermal necrolysis syndrome (TENS), are intense autoimmune sensitivity reactions to infections or medications that primarily affect the skin and mucus membranes, including the eyes. SJS / TENS usually begins with non-specific symptoms such as coughing, aching, headaches, burning eyes, and feverishness. They may be followed by a red rash across the face and trunk, which often spreads to other parts of the body. The rash can form into blisters covering the skin and mucus membranes, including the eyes and inside of the mouth.
Ocular complications in mild cases can include irritation, light sensitivity and dry eye; in severe cases, it can lead to extensive tissue damage and scarring that can result in blindness.The disease can also permanently damage the inside of the eyelids, causing the margins to become rough and develop abnormal fine lashes that rub against the cornea. It can be further aggravated by the dryness that results from damaged tear and oil glands that are critical to maintaining the health of the ocular surface system.
For more information visit the Stevens Johnson Syndrome Foundation website at http://www.sjsupport.org/.
What is PROSE?
Hundreds of patients with SJS / TENS - just like you - have had their vision restored and quality of life transformed with our innovative treatment: prosthetic replacement of the ocular surface ecosystem (PROSE). PROSE uses FDA-approved custom made prosthetic devices to replace or support impaired ocular surface system functions that protect and enable vision.
The prosthetic devices created during PROSE are transparent domes, about the size of a nickel. They look similar to an oversized hard contact lens and resemble a margarita glass without the stem in shape. Devices fit under the eyelids, vaulting the damaged cornea and resting on the sclera (the relatively insensitive white tissue of the eye). Worn during waking hours, patients are trained in daily application, removal and cleaning as part of the treatment process.
PROSE devices are made out of a highly gas-permeable hard plastic that allows oxygen to reach the cornea. They are designed to create a space between the device and the eye that is filled with sterile saline. The liquid remains in the reservoir, providing constant lubrication by bathing the eye in a pool of artificial tears.
Benefits of PROSE
- Reduces SJS symptoms including pain and light sensitivity and supports healing by restoring a healthy ocular surface environment
- Improves blurry vision by masking irregularities on the cornea’s surface and transmitting a sharp image to the back of the eye
- Prevents further damage by protecting and shielding the cornea against the environment, eyelids and eyelashes
Note: The prosthetic devices used in PROSE were formerly known as Boston Ocular Surface Prosthesis (BOS-P), Boston Scleral Lens devices and Boston Scleral Lens Prosthetic Devices.
A Hero Among Us
When Stevens Johnson syndrome hit 22 year-old Jeriann Peabody in October 2011, it hit her hard. By the time she left the hospital, her eyes were severely light sensitive and she was in constant pain, making returning to work and college impossible...read more.
SJS Symptoms and Treatment Success
A 2010 BFS survey of 156 people with SJS (39 PROSE patients) found that:
- 79% had moderate or severe light sensitivity
- 76% had eye pain
- 69% had difficulty reading regular print newspapers, magazines or websites
- 68% had difficulty driving at night
- 68% had difficulty with work or hobbies that require seeing up close
When asked about their success with various treatments:
- 3% had significant success with oral antibiotics, fish or flaxseed oils
- 12% with topical steroids
- 13% with topical antibiotics
- 18% with artificial tears, lubricant gels or ointments
90% had significant success with BostonSight™ PROSE treatment*
100% had moderate or significant success with BostonSight PROSE
* Survey questions refer to success with Boston Ocular Surface Prosthesis (BOS-P) and Boston Scleral Lenses used exculsively in BostonSight™ PROSE treatment.
Read more patient survey results in our Report Back to the Community.
“BFS has restored a good part of my life. The compassion, service and financial support received, by myself and so many others, have brought us back a workable, livable and more comfortable life. The two week initial fitting was the first time I met other people with Stevens Johnson syndrome. It was the best care I have had in any medical situation ever and I left able to see and read again!”
— BFS patient